Short and sweet, because if I type out how I really feel about all this, y'all will see my ugly come out and I just cannot do that to all of you.
So.
The new Rheumatologist's nurse called tonight to tell me that all of the rheumatoid-based testes he ran are perfectly normal. Which means, drumroll, I do not have anything rheumatoid based- like rheumatoid arthritis.
Which is what the last guy said I had, hands down, and has been treating me for. Which no results. At all.
For 15 months.
Which is why John and I sought out this new guy and waited 3 months for an appt and another for the results of these tests.
So, I have been in this wheelchair being treated incorrectly to no avail for a year and half basically which who knows what damage being done to my muscles, affecting my ability to get up and walk again in who knows what ways.
I see him again next Friday to find out where we go from here- all we know is that my SED rate is high meaning there is inflammation.
Why? Who knows.
That is all we know for now.
On the transplant front, we just found out that the blood we re-drew a Thursday before New Years just got to Cedars yesterday too old to work with (Odd thing is we overnighted it- thank you USPS). So, we have to draw again on Tuesday am, get it to the Post Office by 2pm to ensure next day am delivery so it is usable.
So, we are still not even in the process of knowing if Sarah is a viable living kidney donor match.
I think y'all can understand the levels of frustration around here at the moment.
So rather than go on, I will just say Adios, Vaya Con Dios.
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