Living In Grace

To be or not to be? Rheumatoid Anthing is no longer the question.

Short and sweet, because if I type out how I really feel about all this, y'all will see my ugly come out and I just cannot do that to all of you.

So.

The new Rheumatologist's nurse called tonight to tell me that all of the rheumatoid-based testes he ran are perfectly normal. Which means, drumroll, I do not have anything rheumatoid based- like rheumatoid arthritis.

Which is what the last guy said I had, hands down, and has been treating me for. Which no results. At all.

For 15 months.

Which is why John and I sought out this new guy and waited 3 months for an appt and another for the results of these tests.

So, I have been in this wheelchair being treated incorrectly to no avail for a year and half basically which who knows what damage being done to my muscles, affecting my ability to get up and walk again in who knows what ways.

I see him again next Friday to find out where we go from here- all we know is that my SED rate is high meaning there is inflammation.

Why? Who knows.

That is all we know for now.

On the transplant front, we just found out that the blood we re-drew a Thursday before New Years just got to Cedars yesterday too old to work with (Odd thing is we overnighted it- thank you USPS). So, we have to draw again on Tuesday am, get it to the Post Office by 2pm to ensure next day am delivery so it is usable.

So, we are still not even in the process of knowing if Sarah is a viable living kidney donor match.

I think y'all can understand the levels of frustration around here at the moment.

So rather than go on, I will just say Adios, Vaya Con Dios.

 

 

 

 

 

 

An update in the New Year

The only new thing to report is that Cedars never rec'd the blood I sent in Nov to be cross matched against the only possible living donor I have (Sarah), so I had to send them more last week. We are in a 4 week waiting period now while they do all the tests they need to, see if she is good to go and if not, if they have a protocol to resolve any issues there are between the two of us.

If not, then we must wait and pray like crazy for someone else to come forward to be tested as a living kidney donor, as she is the last one.

I do hope that all of you had an amazing Christmas and New Year's, and that y'all are brought all God's blessings in this coming year.

We are officially in Year 5 of this adventure called Renal Failure and wonder when we will move to the next phase called Renal Transplant Success and Healing.


Our family stands firm that God is in control, though we obviously question the "whys" and "whens" of His timing here and there.

But, in the end, we know there is a plan. And that is enough for us, regardless of our human failing to question and wonder.

We love you all and continue to be thankful for the support you have given us throughout this time.

Thank you, thank you and thank you again :)

Love,
Kelli