So.
We have a plan ... but first, I will outline yesterday and all it's gory details.
My liver biopsy was scheduled for yesterday, and we needed to be there at 12:30 to check-in. For some reason, it was a test that required anesthetic, so my afternoon was pretty much shot.
On the way there, I happened to call the clinic to ask a question, and was given my lab results from the week prior. These were the tests to show how well I was doing back on home dialysis (PD), and to confirm our decision to pull the hemo cath out of my shoulder had been a good one.
Yeah.
That went well.
My BUN was 170 (as compared to optimal below 50) and my creatinine was 13.7 (good? 7.0 or so) ... so basically, I'm back to my body being in a state of toxemia again.
At that point, we canceled the biopsy and waited for the doctor to call.
I don't know if I have told you just how much I love my doctor. He has a biting sense of humor, and we get on well together. He is direct, to the point and pulls no punches withme. And I love it.
When we finally called (and int erupted our "improve mommy's mood with a BBQ"), he asked how I was feeling. My response was, "Great, until I got labs this morning".
To which he responded, "Yeah, they looked like !&#(*&@".
My thoughts..
Exactly.
After a lot of discussion, part of which revolved around me insisting that the computer chip in my dialysis machine would bear out that I was in fact doing exactly what I was supposed to do.
Once *that* was resolved ....
We put a plan together.
Wednesday: New labs will be drawn.
Thursday: We will review labs. (I am confident things will be the same.)
Friday: I will go into the hospital for a few days so they can mimic my dialysis to ensure things are being done correctly.
Next week: (Most likely) We will run another PET test to determine if major changes need to be made to my dialysis prescription.
So that is the plan.
I will be live blogging from the hospital -
I know. You're excited.
Thank you all for your encouragement yesterday. I'm still fighting the depression that it threatenting to settle over me, but I'm wokring at keeping a smile.
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