Bad news in Bedrock today.
Monthly clinic was Monday, with labs drawn.
We discussed the last two months how, since surgery on September 5th, my urine output has been down. At clinic they said to keep an eye on it, since it may be related to surgery recovery
Okay.
So, this morning my dialysis nurse calls and leave an urgent message. When I called back, she was gone and her backup was with a patient.
Since we were driving over to the Dr. today anyway, I figured we would run over after and get the results.
Okay.
Well, as we were pulling into the clinic Dr. Feldman called.
Never a good sign.
After telling him we were just pulling in, we decided to talk inside.
As I hung up the phone, I turned to John and said "I'm in trouble."
haha
Heart' s pounding, stomach beginning to do the knot dance.
I got upstairs to the office, and got settled into the chair for infusion. Dr. Feldman came in, said nothing and handed me my labs.
My first words?
"Those aren't my labs".
They were awful.
Like, what I looked like when I moved here from Arizona, awful.
The dialysis nurse had notes stating "Kelli's compliance to her dialysis routine is down. What are we going to do about her?"
Um, excuse me?
Nice notes, considering she had not even talked to me about them yet.
I insisted I'm doing everything I should be, no changes.
Nothing.
Nada.
I'm frustrated, angry and scared.
I explained, again, that my output has definitely gone down significantly since surgery. Could I be losing the last of my residual function? Could that be causing these numbers to look like this?
The odd thng is I feel better than I have in a long time.
Normal almost.
I've been running errands with John.
Doing abit more around the house.
It makes NO sense.
We redrew labs today to see what it looks like.
The thing that makes no sense is last month everything looked great, and my dialysis tests (to see if I'm getting adequately dialyzed) was better than number. 2.97 to a goal of 2.0.
Gold star.
What, how, why would everything just crash?
he scary part is we ar talking about a 30 year plan.
Today? He said with number like this, I'm dead in 3. Maybe 4.
Good morning to you, too.
I've had the highest high this week, and now this.
It's totally un. fair.
And don't get me started about our school counselor's appointment today.
Please.
Be praying for John. He is taking all of this hard. Really hard. We are so confused and frustrated.
We need answers. Fast.
Hopefully, better news in on the horizon.
Honestly, it can't be much worse.
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