So.
Here we are.
A bit further down the road from this post .... and even more from this one ....
For those of you new to the blog, I've been sitting on the Wait List for Kidney with Denver Porter Adventist Hospital for just over a year now. And, just in the last few weeks have been trying to get things moving to double-list at the Mayo Scottsdale Clinic here in Arizona.
Long, long, long story short ... we had been assigned to a coordinator that, well, didn't seem to move.
She didn't move slow-ly, she just didn't move.
It's a complicated process getting listed.
First, you need a referral from your specialist. Check!
Then, she needed height and weight for qualifying. Check!
Next, we went through paperwork galore ... history, insurance, blah blah blah .... Check!
Then, we were supposed to hear about coming in for a week long evaluation.
I said, next, we were supposed to hear about coming in for a week long evaluation.
Bueller. Bueller.
Nothing. Nada. Zip. Zilch.
Several phone calls were made. Several voicemails were left. Several weeks passed.
Bueller. Bueller.
Nothing. Nada. Zip. Zilch.
Finally, I called and asked for a new coordinator, and explained my sob story to the poor girl who answered the phone. She couldn't promise me anything, but thought she would see what was up.
When she called back 10 minutes later, she had been told they were waiting for insurance clearance.
6 weeks? For the insurance to clear?
Bzzzzzzzzzz. Wrong answer. Thanks for playing.
I got Ms. Insurance on the phone, the insurance on the other and in just a few minutes it was done. (Sophie, sound familiar?)
Anywho.
I now have insurance approval. a sweet new coordinator named LeAnn, and all the required tests that Denver has in their possession is being sent to Mayo. Once received, it should cut my stay there for evaluation from a week to three days- Hurray!!!
The best news is, that once listed and confirmed, we FINALLY get to start testing living donors! The moment we have ALL! BEEN! WAITING! FOR!
Mayo has an extensive cross matching program, so my chances of getting a donor are greatly increased with them! We aren't constrained, so much, by blood type!!!
IMPORTANT: If you have expressed interest in being a living donor, or would like to be considered :) ... and are willing to come to Scottsdale, AZ for surgery if you are THE match ... we will need to have you contact Mayo directly for their living donor packet. Feel free to shoot me an email for contact info.
Another step closer.
Lastly, if you could please be praying. We are looking to figure out fund raising for associated costs not covered by insurance (such as travel room and board for the living donor), as well as contacting those who provide transportation services to transplant candidates and potentially the donor. I will be needing to go to Denver once transport is arranged, for the annual re-evaluation required to stay listed.
Now that we are finally able to get "down and dirty" in this process, there is so very, very much to do.
And homeschool still goes on.
As does life :)
And laundry.
Sigh.
Recent Comments